The Ben Williams Trust provides support to children with abnormal heart rhythms (arrhythmias) and their families, helping them to learn to live with their conditions and in some cases the threat of sudden death. It does this by funding the creation of specialist posts at the Royal Brompton Hospital, London; firstly Ben’s Nurse, a ground-breaking nurse specialist role and most recently a Clinical Psychologist. The Trust also supports youth cricket, with a particular emphasis on wicketkeeping.
The second post to be created at the Royal Brompton Hospital with funding from the Ben Williams Trust was that of the Ben Williams children’s cardiac clinical psychologist specialising in inherited heart disease. Michele Puckey, Consultant Paediatric Clinical Psychologist explains, “a positive diagnosis of inherited cardiac disease can cause great stress for all those involved. The clinical psychologist works alongside the current team of professionals with children and their families to promote psychological well-being, offer support and to help with any psychological problems that may arise. As with Ben’s Nurse, the aim is to help those impacted to live as normal a life as possible. Research is also being undertaken into how the provision of psychological support can be improved, with proactive rather than reactive intervention.”
The post has been up and running from 1 April 2014 and we are delighted that as intended it will attract mainstream NHS funding from 1 April this year. We would like to thank Dr Hannah Levy and Dr Chantell Douglas for making the role such as success, and to Michele Puckey for all her support in helping to make this happen.
We are now looking to fund a third new post at the Royal Brompton, with a special focus on providing additional support for those like Ben making the transition from child to adulthood.
April has been a Marathon month for the Trust. On 2 April, Ben’s cousins Ellie and Owen ran the Liverpool half marathon in 2 hours 55 minutes and 2 hours 6 minutes respectively, raising over £700 for the Trust. And on 9 April, Ben’s cousin Sarah completed the Paris marathon in 4 hours 36 minutes raising over £1,500 for the Trust. Congratulations and thanks to you all!
On this website you can find out more about the Trust, see how we are using the £375,000 that we have raised, and catch up on our news and fundraising activities. You can also make a secure donation on line using our Just Giving facility and download a copy of the 2016 Newsletter.
For other enquires, go to the Contact Us page.